Monday, February 11, 2008
Valentines Day has added meaning in our lives this year as we and virtually every state will celebrate "A Day For Hearts - Congenital Heart Defect Awareness Day." Congenital Heart Defect Awareness Week is February 7-14. Families intend to bring awareness to the general public about Congenital Heart Defects (CHD). It is our sincere hope that efforts to educate the public will result in additional funding for scientific research, support and educational services and early detection and screening. CHD is the number one birth defect affecting 1/100 babies and the number one cause of death from birth defects. Staged palliation for HLHS is one of the great achievements of congenital heart surgery in the 90's which has an overall 70-75% survival rate at age 5...a true miracle! We are grateful for the doctors, researchers and families in the past and present that have made it possible for Tyler to be fighting HLHS!
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3 comments:
We actually have a few close friends and family affected by this, so we appreciate this too!!!! Thanks! And, love the suitcase pics!
Go Tyler, I know you can do it.
He's a tough kid...he'll make it for sure! Yay!
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