Tylers Liver Appt
Ok, I LOVE Susan, Tyler's liver nurse specialist. I also love Dr. Rosenthal, the New Yorker, top pediatric liver specialist who tells it how it is. Last week we put Tyler on Enfamil Gentlease, a formula for gassy/fussy babies, AKA Tyler. His pediatric specialist said hopefully it will help. First thing Dr. Rosenthal says is, "what the hell is that?" Almost a duh, why did you do that? I told him, I thought gassy/fussy/crying baby needs formula to help gassy baby. Nope! I soon learned that Tyler, our liver malfunction baby needs something with MCT oil that has broken down fats that can be absorbed without proper liver function. So we will start a new formula, Pregestimil, that will fatten this boy up, hopefully at least add an ounce. Have to love special formula. We are hoping insurance covers some of the cost. Usually it is just covered with feeding tubes, but we'll see. We met with a liver specialist nutritionist who gave us the weekly recipes to add calories. Normal