Reasons to Smile...
Tylers numbers(AST, ALT, t. bili;6.9) have improved. he gained weight, 10lb 14 oz to 11 lb 4oz, for the first time in weeks . He is eating a lot more. He wakes up by himself every 2 hours at night to eat instead of being too tired. Best part is that he is a happy boy and finally seems to be feeling better. He generally cries when he is tired, hungry, wants to be held, Scott drops a train on him or needs to poop...normal baby behavior. He is a pure delight and we are enjoying every minute of it. He laughs now which I LOVE!! I need to learn to post videos. I feel like he is the most stable he has ever been, which I know is an answer to prayers prior to his operation in 1 week. We go to UCSF Wed morning at 6AM for his cath. He will stay for pre-op testing until his surgery on Friday. Through this experience I have learned to listen to your intuition. Looking back I knew that his non-stop crying was more than colic or fussy baby things. It was an "I am in constant pain, help me cry." I feel so bad that he had gallblatter/intestine pain for so long but grateful that doctors were able to find the problem and help fix it. There are so many problems that can never be fixed and I feel so blessed for the great medical teams that have blessed little Tyler. Several people commented on what a cute and good baby we have yesterday. That is the first time that has ever happened. Ok, time to go play today. Scott was going to have a friend come over but he might be getting a cold...I hope our life returns to normal within a couple more months for Scott.
Comments
Don't know if you remember me. We moved out of the Walnut Creek ward last May and I found your blog page through many, many other pages. It's a small blogging world. Anyway, I am amazed at how well you are all doing in the midst of Tyler's heart work. It's very inspiring and humbling. When we left you were still pregnant so I never met him, but he's beautiful!
Heidi was away coaching a swim meet, Danny was working and the boys were spending special time with Grandma and Pop. Tyler had a "super" day eating well, smiling, laughing, playing with his toys and being happy all day.
Scott had a fun time playing trucks, cars and trains and going on a field trip to Toys R Us to ride all the Jeeps, SUV's and Power Wheels.
The day truly ranked as A+!!
Dave
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But, what about the bottom line? Are you sure in regards to the
source?
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