Lab Results

By

Tyler's AST, ALT, GGT have all come down nicely which is a good sign. It may take a few weeks for his bilirubin to trend downward which is currently at 11. They will continue to monitor his liver once a week at UCSF until his heart surgery. He was up about every 1.5 hours last night which was a good thing so he could eat. He wasn't crying that much which makes night feedings fine. The pregestimil seems to give a better result with the color and consistency of his poop. Hopefully it will help him absorb some fat. It took him a while yesterday to start eating it which they say is normal This is Scott 1 year ago discovering his tongue. I imagine this is what Tyler feels like with his new formula.

Comments

Heart Mommy said…
Our friends have had their boy on progestimile for a really long time... They buy it off the internet for half the price.. Ebay I think... As long as it is not open then I think it is safe... Good luck... Glad to hear he is doing a little better.
2/1/08, 12:01 PM
Unknown said…
This picture of Scott brought back great memories! He was so funny when he discovered his tongue. It sounds like you've had a better week with Tyler. It sounds like you are on the right track and heading for his heart surgery.
2/2/08, 9:17 AM
Kerry Hoaglund said…
Good to hear he's getting better!!! Good luck with everything. I hope it goes well!
2/2/08, 5:12 PM
The MacMizzles said…
You know, I have found feeding, and the whole poop thing to be quite an ordeal. Sometimes Oliver screams because the formula I feed him has so much Iron. I try to counter balance it with lots of foods with fiber and other good things, but it is hard. Adding Bilirubin to the mix must make it even harder. I will think of you weekly and send all my positive energy your way. Hopefully by the surgery his liver will be nice and ready. You and Danny are doing such a great, HARD job, best wishes to you.
2/4/08, 9:56 AM
Post a Comment

Popular posts from this blog

Update

By
Image
My mom is in town from Utah. She spent the night at the hospital last night and has been holding Tyler quite a bit. He really enjoys being held, so he's less fussy and has responded well to the weaning of the oxygen. He's on regular air, but I guess it's still the high-flow to keep his lungs inflated. He's up to 9 cc's of food per hour, an improvement over yesterday's 2 cc's. The picture is of Betty and Bob Maddox (Heather's in-laws), Jacquie Lietz (Heidi's mom), Heather Maddox (Heidi's sister), and Walt Lietz, Heidi's dad. They did a 5K walk to raise money for the American Heart Association. Thanks to all who donated on behalf of Heather and Tyler!
Read more

Periacetabular Osteotomy "Hip" Surgery

By
Image
Ok, should we just rename our blog the McMillan Pediatrics Medical Journal? Everyone has issues. Our family is congenital medical disorders. Tylers heart, Carls brain and Dannys Hips. Danny had hip discomfort growing up, visited the doc at 17 and was dismissed with "bad hips." He learned to make the best of his hips by monitoring his activity, walking slowly, making me wear hiking packs and taking breaks. After experiencing back pain this year he went to a doctor who took one look at his x-ray and sent him to orthopedics who sent him to a surgeon. We are blessed with a great friend who is amazing hip surgeon and chief of orthopedics AKA John Kronick who guided us in our decision. Our family is always taken care of in miraculous ways. Here are his hips: The Problem: acetabular (hip) dysplasia is a congenital disorder usually formed by age 3. His acetabular is more dish shaped instead of cup shaped. A normal hip would surround the head of his femur. His X-ray shows signs of art
Read more

Swim Lessons

By
The season has begun for summer swim lessons. If anyone is interested in or knows someone who is looking for swim lessons please pass on my information. Thanks and enjoy the summer!! I began coaching 9 years ago at the recreational level and currently coach the Walnut Creek Aquabears United States Swim Team (www.Aquabears.org). I grew up in Walnut Creek, was a nationally ranked swimmer and collegiate record holder for BYU. I specialize in private lessons and customize each lesson to meet your child’s specific needs. I provide instruction in Walnut Creek or in the privacy of your own pool. Beginning Lessons Learning to swim helps children gain self-esteem, independence and motor skills. I use a gentle approach to help teach your child to love the water. I help children learn water safety skills, breathing techniques, floating and the four basic strokes. Advanced Stroke Technique Attention to stroke technique is important for an advanced swimmer to improve efficiency in the water. Pri
Read more