Reflecting on the Glenn
Tyler 1 day post op still looking pretty swollen.
Scott checking up on his brothers heart.
Round 2 of the pulmonary perfusion scan.
Talking to Daddy on the phoneHappy to see Dad instead of talking to him on the phone.
I want to write a few of my thougths about the Glenn. We went in with peace and felt it would be a short hospital stay even though we planned for a long one. You never know about infection, arrythmias, and the unexpected. I didn't expect that Tyler would be so attached and aware of mom and dad. I left twice at night and realized that it was too hard for me and more importantly hard on Tyler. You soon find out how to comfort, relax and help your little one get to sleep amidst all the lines that he is connected to. I realized how much all the nurses and doctors meant to us and how much I enjoyed and appreciated their company. The stay isn't bad because you get to know others and they get to know you. I am so thankful for becoming friends with Allison and Josh. It is so nice having another mom going through and understanding the things that you are going through. Overall, even though I left exhausted from night feedings, constant rocking and emotional ups and downs, I am grateful for the time we had at UCSF. Tyler continues to touch lives through his example, patience and love. Everyone talked so highly of our cardiologist, Dr. Cooper and his nurse, Anne, who I grew to appreciate more and more for all they do. We went to the park this morning, have a happy baby and are grateful he is doing so well. His heart truly is a miracle. For me, the hardest part of the past couple of months have been his GI issues and constant crying. I don't wish the pain and discomfort of his gallbladder pain on any child. Even though his heart surgeries are hard on him, I don't think that he felt the pain he did for long long with his bile duct issues. I am grateful that this is on the mend as well. I feel like we are finally starting to function normally again.
Scott checking up on his brothers heart.
Round 2 of the pulmonary perfusion scan.
Talking to Daddy on the phoneHappy to see Dad instead of talking to him on the phone.
I want to write a few of my thougths about the Glenn. We went in with peace and felt it would be a short hospital stay even though we planned for a long one. You never know about infection, arrythmias, and the unexpected. I didn't expect that Tyler would be so attached and aware of mom and dad. I left twice at night and realized that it was too hard for me and more importantly hard on Tyler. You soon find out how to comfort, relax and help your little one get to sleep amidst all the lines that he is connected to. I realized how much all the nurses and doctors meant to us and how much I enjoyed and appreciated their company. The stay isn't bad because you get to know others and they get to know you. I am so thankful for becoming friends with Allison and Josh. It is so nice having another mom going through and understanding the things that you are going through. Overall, even though I left exhausted from night feedings, constant rocking and emotional ups and downs, I am grateful for the time we had at UCSF. Tyler continues to touch lives through his example, patience and love. Everyone talked so highly of our cardiologist, Dr. Cooper and his nurse, Anne, who I grew to appreciate more and more for all they do. We went to the park this morning, have a happy baby and are grateful he is doing so well. His heart truly is a miracle. For me, the hardest part of the past couple of months have been his GI issues and constant crying. I don't wish the pain and discomfort of his gallbladder pain on any child. Even though his heart surgeries are hard on him, I don't think that he felt the pain he did for long long with his bile duct issues. I am grateful that this is on the mend as well. I feel like we are finally starting to function normally again.
Comments
I have read your blog for months now...and every time I check in, I am inspired by you! I think your boys are precious, and I am glad Tyler is well. I am thinking about all of you!
Meg Honey :)