Day 5

Tyler is doing well! Yeah. He loves being held and we love holding him. He is a little uncomfortable from the pge and not being able to eat but calms down quickly. The most important thing is that his heart and lungs seem to be doing well. We accepted to participate in a study that tracks neurological effects from infant cardiac surgery. Since cardiac surgery is so successful UCSF is starting to look at other effects of surgery. Tyler qualified due to a level 1 hematoma and the doctors were most likely going to do an MRI today to see the location, size and implication of his hemotoma prior to surgery. In this study they will do a pre-operative and post-operative MRI as well as developmental tracking at 1 year and possibly sooner if needed. I didn't have my camera but they have an infant mri incubator that was quite a futuristic looking large bed. The neurologist will be able to give us a good sense of how, if any, the surgery affected his brain as well as how he is doing in the future. Danny and I both felt good about participating and feel lucky that neurologist will be tracking and intervening with his developmental levels if needed. We figure the more information we can receive from how his development and brain is doing the better. These children are usually slightly delayed but do well considerably well neurologically considering all that they are put through. The surgery will most likely be Tuesday or Wednesday. The surgeon will probably meet with us today. I have a feeling it will be Wednesday. Whatever is best for Tyler. I am feeling great. I received a blessing at church yesterday for my high blood pressure and pain from child birth. I have felt so great since and am certain my blood pressure has lowered. I am so grateful for our many blessings especially Tyler and Scott. They fill us with more joy and love than we can describe. What a blessing it is to have them in our lives. We thank everyone for your thoughts and prayers. They are definitely being felt and heard. Yesterday night Tyler was having a hard time falling asleep and uncomfortable when I went to the room around 12. I said a little prayer that he would be able to sleep and be comfortable and the nurse said that he slept peacefully the rest of the night. Little miracles that we are so grateful for.