Monday, September 10, 2007

Day 5


Tyler is doing well! Yeah. He loves being held and we love holding him. He is a little uncomfortable from the pge and not being able to eat but calms down quickly. The most important thing is that his heart and lungs seem to be doing well. We accepted to participate in a study that tracks neurological effects from infant cardiac surgery. Since cardiac surgery is so successful UCSF is starting to look at other effects of surgery. Tyler qualified due to a level 1 hematoma and the doctors were most likely going to do an MRI today to see the location, size and implication of his hemotoma prior to surgery. In this study they will do a pre-operative and post-operative MRI as well as developmental tracking at 1 year and possibly sooner if needed. I didn't have my camera but they have an infant mri incubator that was quite a futuristic looking large bed. The neurologist will be able to give us a good sense of how, if any, the surgery affected his brain as well as how he is doing in the future. Danny and I both felt good about participating and feel lucky that neurologist will be tracking and intervening with his developmental levels if needed. We figure the more information we can receive from how his development and brain is doing the better. These children are usually slightly delayed but do well considerably well neurologically considering all that they are put through. The surgery will most likely be Tuesday or Wednesday. The surgeon will probably meet with us today. I have a feeling it will be Wednesday. Whatever is best for Tyler. I am feeling great. I received a blessing at church yesterday for my high blood pressure and pain from child birth. I have felt so great since and am certain my blood pressure has lowered. I am so grateful for our many blessings especially Tyler and Scott. They fill us with more joy and love than we can describe. What a blessing it is to have them in our lives. We thank everyone for your thoughts and prayers. They are definitely being felt and heard. Yesterday night Tyler was having a hard time falling asleep and uncomfortable when I went to the room around 12. I said a little prayer that he would be able to sleep and be comfortable and the nurse said that he slept peacefully the rest of the night. Little miracles that we are so grateful for.

7 comments:

Ron and Lynn McMillan said...

It is so wonderful to see pictures and hear how things are going! What an amazingly beautiful baby! You are in our prayers....keep us posted. Ron & Lynn

Heather said...

So glad to hear that he is doing so good today. That is great to hear about the study he will be in. Makes you realize what a great place UCSF is. Hope you are doing good. I'm so proud of you and Danny. Give Tyler a big hug from me...I miss him already. Can't wait to see him soon.

Love you so much!
H

Pete said...

Heidi and Danny,
We're glad to hear that Tyler is doing so well. We know that this week's surgery will be a success.
Pete and Judy

Jen J said...

Heidi and Danny,
It's Jenny and Tim. We are definitely praying for little Tyler and your family as you cope with the surgery and recovery! It's obvious what a special spirit this baby is and how much the Lord loves and trusts you to send him to your family!

Much love,
the Jacobsons

Jacquie said...

Spending time at the hospital on Sunday and seeing Tyler relaxed and comfortable was special. It was cute seeing him cuddle in grandpa's arms as they both took their afternoon naps. Scott had a great play day at the Clive's and is doing great. Whoever I see or talk to send their love and prayers. I'm so proud of you - you are awesome parents!
Love, Mom

Anonymous said...

It was really great to hold Tyler on Sunday and I know he is doing well with both of you there to care for him.. love.. Dad..

Unknown said...

Heidi, it was really great to have Scott here yesterday. He is so funny! Do you listen to Norah Jones a lot? When I turned on Norah, he perked right up and it even sounded like he said 'Norah'. If you don't listen to her, you should start.
We pray for you and Danny and Tyler and Scott. We are all strengthened by your example and lifted to be better, kinder, longer-suffering people by Tyler's. It does just make you want to be better, you know.
-Mardee.