Day 2

Danny tried bringing Scott into seeing Tyler and he did much better and just kept waving to him. Scott just wanted to touch his new baby brother which was very cute! We know Scott is going to be a great big brother. Tyler looked great in the evening, even though he was connected to a lot of things. That night, Danny and I stayed at the hospital in a room they have for parents. UCSF has great play rooms for siblings and patients as well as so many great ammenities for parents. The staff has been so great and suppportive. We feel so blessed to live so close to some of the top surgeons and facilities in the world to take care of hypoplastic children. Tyler had a rough night and morning with heavy breathing and some convulsions due to Prostaglandin (pge), a drug he is given to keep his ductus areteriousus open allowing his body to receive oxygenated blood. They had a really hard time putting in a PICC line to replace the lines in his belly button. These lines will stay in for a month, allow him to receive medications and draw blood so he doesn't have to get poked so much. He seemed really uncomfortable today. They are hoping to decrease the prostaglandin to help ease the breathing and help him be more comfortable and hopefully take the breathing tube out. He is becoming pretty jaundiced since he is unable to eat before the surgery, so they will probably put him under lights starting tomorrow. It was a rough day for little Tyler, but he is sticking in there. We are so proud of him. He is such an example to us and we love him so much.