Yep, we loaded Tyler into his carseat after getting thoroughly instructed about all of his meds, feeding schedule, how to check if the nasogastric tube is properly inserted, and other stuff. Still, though, we were overwhelmed when we unpacked everything the hospital sent with us. We have an IV stand, a pump to feed him, two stethoscopes, and geez, a bunch of stuff. Whoa. Now we need a new house just so we can have a pantry for his medical supplies!
Tyler is doing well, though, so we are very happy about that. Scott is a little distressed that he's not getting as much attention anymore, so he'll throw stuff. The poor little guy! We'll make it through. People say, "Aren't you glad you don't have to go into the city anymore?" I'm like, "Well, he's got an alarm for anything that goes awry, and when we go to bed, someone on staff is there to help!" We spent 2 hours at the pharmacy when they kept saying, "15 more minutes!" Yeah, right! Woof. Now Heidi's going to write.
So they claimed that Kaiser doesn't carry methadone, but recommended to start driving to outside pharmacies. Can you imagine. Scott was hungry, I needed to feed the baby and pharmacies were probably closed. As soon as I told them to call the doctor at UCSF they mysteriously found that in-house pharmacy had it. I just keep laughing, knowing that we will soon be laughing at the days of trying to figure out a feeding pump, having a house full of baby clothes and not knowing how we will survive. It will be humorous in a day or two...or so we hope once we have figured things out. It sure is nice having Tyler home!! He looks great. In about 2 months he will be back at UCSF for his heart catheterization. That usually takes 1 day of recovery. It will help determine if he will be ready for surgery 2. Usually it is done at 4-6 months. Hopefully we will stay out of UCSF before that. He has his first doctors appt on Monday and his cardiology appt on Wednesday. The doctors office will be my second home.
Tyler is doing well, though, so we are very happy about that. Scott is a little distressed that he's not getting as much attention anymore, so he'll throw stuff. The poor little guy! We'll make it through. People say, "Aren't you glad you don't have to go into the city anymore?" I'm like, "Well, he's got an alarm for anything that goes awry, and when we go to bed, someone on staff is there to help!" We spent 2 hours at the pharmacy when they kept saying, "15 more minutes!" Yeah, right! Woof. Now Heidi's going to write.
So they claimed that Kaiser doesn't carry methadone, but recommended to start driving to outside pharmacies. Can you imagine. Scott was hungry, I needed to feed the baby and pharmacies were probably closed. As soon as I told them to call the doctor at UCSF they mysteriously found that in-house pharmacy had it. I just keep laughing, knowing that we will soon be laughing at the days of trying to figure out a feeding pump, having a house full of baby clothes and not knowing how we will survive. It will be humorous in a day or two...or so we hope once we have figured things out. It sure is nice having Tyler home!! He looks great. In about 2 months he will be back at UCSF for his heart catheterization. That usually takes 1 day of recovery. It will help determine if he will be ready for surgery 2. Usually it is done at 4-6 months. Hopefully we will stay out of UCSF before that. He has his first doctors appt on Monday and his cardiology appt on Wednesday. The doctors office will be my second home.
10 comments:
Danny & Heidi--I am amazed at how you two are holding it all together! It's great to hear that Tyler is home now. And I have to say that he is *strikingly handsome*. I wish I could hold him! Love to you!
I'm so glad that he is home, but I understand how nice it is to have a doctor handy too. Rebecca would love to have a play date with Scott, if he is needing some more attention. We are still keeping you in our prayers.
Kelli & Steve
Heidi and family, I am so excited that Tyler is home! What a journey he has made as well as you all! Take care and know that you are all being watch over by angels during this crazy time. Enjoy your new family in the comforts of your home! Love to u, Ashley and family
Tyler is a beautiful boy! I'm so glad that he's home. I'm sure Scott will adjust eventually. It sounds like everyone has some adjustments to make. I'm impressed by your positive attitudes through it all! You're truly amazing!
Love, Julia Mc
Glad to hear that Tyler is home. One more step taken. Keep up the good work and don't forget to keep smiling. We are all pulling for you all.
you can do it, you guys are doing so great and he looks awesome. so glad he is home!!!!
I hear you about the attention thing with the older one. Zane is just barely getting back to himself again (he went about 6 months backwards in behavior with throwing spitting yelling shouting ignoring, etc and we just ignored what wasn't dangerous and it got better in a couple days).
How exciting to finally have him home! He looks so good! That's awesome!
So glad that Tyler is home and doing good. We can't wait to see him. Hopefully within the next day or so when we are back.
Love,
H
PS. He looks like Heidi as a baby. I definitely see it in the picture you just posted.
Spending time with both Scott and Tyler together is so special... As I hold and rock Tyler I definitely see many features of Heidi in his precious face and long toes & fingers. Danny & Heidi are great parents and are taking such good care of Tyler -I'm so proud of you. Love, Mom
Heidi, what a happy day. He is beautiful.
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