He's home!
Yep, we loaded Tyler into his carseat after getting thoroughly instructed about all of his meds, feeding schedule, how to check if the nasogastric tube is properly inserted, and other stuff. Still, though, we were overwhelmed when we unpacked everything the hospital sent with us. We have an IV stand, a pump to feed him, two stethoscopes, and geez, a bunch of stuff. Whoa. Now we need a new house just so we can have a pantry for his medical supplies!
Tyler is doing well, though, so we are very happy about that. Scott is a little distressed that he's not getting as much attention anymore, so he'll throw stuff. The poor little guy! We'll make it through. People say, "Aren't you glad you don't have to go into the city anymore?" I'm like, "Well, he's got an alarm for anything that goes awry, and when we go to bed, someone on staff is there to help!" We spent 2 hours at the pharmacy when they kept saying, "15 more minutes!" Yeah, right! Woof. Now Heidi's going to write.
So they claimed that Kaiser doesn't carry methadone, but recommended to start driving to outside pharmacies. Can you imagine. Scott was hungry, I needed to feed the baby and pharmacies were probably closed. As soon as I told them to call the doctor at UCSF they mysteriously found that in-house pharmacy had it. I just keep laughing, knowing that we will soon be laughing at the days of trying to figure out a feeding pump, having a house full of baby clothes and not knowing how we will survive. It will be humorous in a day or two...or so we hope once we have figured things out. It sure is nice having Tyler home!! He looks great. In about 2 months he will be back at UCSF for his heart catheterization. That usually takes 1 day of recovery. It will help determine if he will be ready for surgery 2. Usually it is done at 4-6 months. Hopefully we will stay out of UCSF before that. He has his first doctors appt on Monday and his cardiology appt on Wednesday. The doctors office will be my second home.
Tyler is doing well, though, so we are very happy about that. Scott is a little distressed that he's not getting as much attention anymore, so he'll throw stuff. The poor little guy! We'll make it through. People say, "Aren't you glad you don't have to go into the city anymore?" I'm like, "Well, he's got an alarm for anything that goes awry, and when we go to bed, someone on staff is there to help!" We spent 2 hours at the pharmacy when they kept saying, "15 more minutes!" Yeah, right! Woof. Now Heidi's going to write.
So they claimed that Kaiser doesn't carry methadone, but recommended to start driving to outside pharmacies. Can you imagine. Scott was hungry, I needed to feed the baby and pharmacies were probably closed. As soon as I told them to call the doctor at UCSF they mysteriously found that in-house pharmacy had it. I just keep laughing, knowing that we will soon be laughing at the days of trying to figure out a feeding pump, having a house full of baby clothes and not knowing how we will survive. It will be humorous in a day or two...or so we hope once we have figured things out. It sure is nice having Tyler home!! He looks great. In about 2 months he will be back at UCSF for his heart catheterization. That usually takes 1 day of recovery. It will help determine if he will be ready for surgery 2. Usually it is done at 4-6 months. Hopefully we will stay out of UCSF before that. He has his first doctors appt on Monday and his cardiology appt on Wednesday. The doctors office will be my second home.
Comments
Kelli & Steve
Love, Julia Mc
I hear you about the attention thing with the older one. Zane is just barely getting back to himself again (he went about 6 months backwards in behavior with throwing spitting yelling shouting ignoring, etc and we just ignored what wasn't dangerous and it got better in a couple days).
Love,
H
PS. He looks like Heidi as a baby. I definitely see it in the picture you just posted.