Update
My mom is in town from Utah. She spent the night at the hospital last night and has been holding Tyler quite a bit. He really enjoys being held, so he's less fussy and has responded well to the weaning of the oxygen. He's on regular air, but I guess it's still the high-flow to keep his lungs inflated. He's up to 9 cc's of food per hour, an improvement over yesterday's 2 cc's. The picture is of Betty and Bob Maddox (Heather's in-laws), Jacquie Lietz (Heidi's mom), Heather Maddox (Heidi's sister), and Walt Lietz, Heidi's dad. They did a 5K walk to raise money for the American Heart Association. Thanks to all who donated on behalf of Heather and Tyler!
Comments
I read back a little through all your experiences with cute little Tyler and wanted to tell you about my friend Avery and her daughter Bela - Bela was born with HLHS a couple months ago. Her blog is http://tanandave.blogspot.com/ If you had time, I know that she would love to "meet" you and hear some words of encouragement :)