Fontan no-go
The team decided that although Tyler's pulmonary pressures are good, his AV valve leaks too much and they would rather postpone his surgery since now he is only an average candidate. We have to rely on the expertise of our specialists, so we will follow their recommendations and Tyler will likely come home tomorrow on enalapril instead of captopril. Good, because we never liked that captopril. When I spoke with Tyler on the phone, he just wanted to play his DS. Heidi said that's how he's coped with the stress. Oh, the brave little man.
I was planning on riding the VFR to San Francisco and spending the night with Tyler, but I was throwing up all night. So I'm going to stay.
I spoke with a pediatrician who said that when he's doing a procedure and he's done all he can, he has to rely on God for the rest. I've actually heard that from several surgeons.
Comments
Sorry you got Kira's bug. Rest is in order for Papa.
Josh was on Enalapril after his Glenn & until his Fontan...it was great! It was a tiny dose compared to Captopril & Josh took it in pill form which was a perfect option for him.
Good luck...and hope that stomach bug leaves the house ASAP!