Tyler Update

It has been a while since we have updated on our little man. He has been doing really well, is happy and a great little brother. He and Scott are starting to interact and play more and it is so fun to see his happy, sweet personality. He had a lung scan at UCSF about 2 weeks ago that showed a decrease in O2 on one side which could be a result of a couple of things. They have always been a little concerned about an aortic coarc as well as stenosis of his Pulmonary Artery due to surgery. His echo and EKG were pretty good last week, but the doctors were concerned about the lung scan result and oxygen sats that have been lower than normal. After his Glenn he was satting in the 90's and the past two months or so have been in the 80's. UCSF called today and we will be going in for a cardiac catheterization on Tuesday. The surgeon (well probably a fellow) will hopefully call tomorrow and go over the details. I think to an extent they go in and figure out what needs to be done. They are going to try to open up the PA stenosis and Coarctation with a balloon, as well as look for capillaries in the lungs to coil off so that his main arteries are receiving more blood and oxygen. We are hoping for an uneventful procedure, but you never know. There are things that could go wrong and we would appreciate all your thoughts and prayers for our little man.

Comments

Anonymous said…
We pray for you all the time. Best wishes!! We love you!!
David and Juliann
Heather said…
Please let me know what we can do to help. I can take off a day or so of work to be with you or to take care of Scott. We love Tyler so much and he will be in our prayers all week.
Tamber said…
Good Luck. I hope you know that all of your BYU friends out here are updated regularly and pray for your family constantly. Shari and I were just talking the other day about how amazing of a family your are. Good Luck! Keep us updated.
Love, Tamber
Paris Bucklew said…
Tyler is always in our thoughts and prayers. He is such a brave little guy. Please keep us updated.
♥ Michele ♥ said…
Good luck! We will be thinking of you.
Robin said…
What ever we can do Heidi and Danny, we're home so..... Prayers deffinitly! Love you,
Bogners
The MacMizzles said…
Prayers to Tyler and the rest of your family. We hope everything goes smoothly. Best wishes. Aubrey
Heather O. said…
We will be praying for little Tyler tomorrow.
Anonymous said…
Dear Tyler, I'm Jes-Oke (7 years old) from Germany and I had my third heart operation in february. My whole family and I are thinking of you. We hope everything will be O.K. at your cardiac catherization. My parents and my brother and sister are praying for you, too.
Best wishes! Jes-Oke with Peter and Christiane, Thies-Peter and Telse from Satrup/Germany
Unknown said…
Tyler is such a strong little guy! Hang in there little guy and you'll be feeling so much more energy after the surgery. With all that oxygen you'll be chasing your big brother around! Our prayers are with yo and your family. Heidi and Danny, let us know if we can help.
Jacquie said…
We were just able to see your blogs on our computer - for some reason they wouldn't transmit until now. Jes-Oke from Germany is dad's cousin's little boy who had 3 heart surgeries. Lot of prayers sent from Turkey...
We love you!! Grandma and Pop

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