Congenital Heart Defects Awareness Week
This year I posted some thoughts on facebook to spread awareness for CHD Awareness Week (FEb.7-14).
Day 1 of CHD awareness week (Feb.7-14). 1 in 100 babies are born with some type of heart condition. Spreading awareness is the first step to increasing support and blessing the lives of thousands of kids and adults who live with a CHD....like my Tyler.
Day 2: Grateful for the surgeons, doctors, nurses, researchers, social workers, child life specialists, nutritionists and therapists. They helped beat the odds more than once for Tyler. They dedicate their lives to blessing heart kids and their families. They see loss, yet continue to care. They untangle lines, administer meds, explain things 100 times if needed, find better methods, give hope, comfort and support. Words can't express our gratitude.
Day 3: While Tyler is doing well, their isn't a day that goes by that we don't think about his heart friends who have lost their fight with HLHS. Their lives were too short. They will not be forgotten. Kylie earned her wings this week as she awaited a new heart. Love and prayers to her family during this difficult time! Help spread awareness!
Nearly 2x as many children die from CHD's each year than from all forms of childhood cancer combined. Spread Awareness!
Day 4: I was told to terminate my pregnancy several times at 26/27 weeks. When I said no, I was told that I didn't understand the severity and that most in my situation terminate. I want to spread awareness that a CHD doesn't mean your life will not be whole. In many ways my son lives a more full life because of his heart. Everyday is seen as a gift. I am thankful for everyone I have crossed paths with, both angels and survivors, who have taught me the real meaning of living a full life.
When you are told your baby has a heart defect you are surrounded with questions, uncertainty and fear of the unknown. In time, the fear and lost dreams are replaced with peace and new dreams. There isn't a day that goes by that I am not grateful for Tyler and his special heart. It truly has taught me so many wonderful life lessons, blessed my lives with heart kids and moms and made me grateful for all the medical professionals that help improve the lives of others. We are blessed!
Day 2: Grateful for the surgeons, doctors, nurses, researchers, social workers, child life specialists, nutritionists and therapists. They helped beat the odds more than once for Tyler. They dedicate their lives to blessing heart kids and their families. They see loss, yet continue to care. They untangle lines, administer meds, explain things 100 times if needed, find better methods, give hope, comfort and support. Words can't express our gratitude.
Day 3: While Tyler is doing well, their isn't a day that goes by that we don't think about his heart friends who have lost their fight with HLHS. Their lives were too short. They will not be forgotten. Kylie earned her wings this week as she awaited a new heart. Love and prayers to her family during this difficult time! Help spread awareness!
Nearly 2x as many children die from CHD's each year than from all forms of childhood cancer combined. Spread Awareness!
Day 4: I was told to terminate my pregnancy several times at 26/27 weeks. When I said no, I was told that I didn't understand the severity and that most in my situation terminate. I want to spread awareness that a CHD doesn't mean your life will not be whole. In many ways my son lives a more full life because of his heart. Everyday is seen as a gift. I am thankful for everyone I have crossed paths with, both angels and survivors, who have taught me the real meaning of living a full life.
When you are told your baby has a heart defect you are surrounded with questions, uncertainty and fear of the unknown. In time, the fear and lost dreams are replaced with peace and new dreams. There isn't a day that goes by that I am not grateful for Tyler and his special heart. It truly has taught me so many wonderful life lessons, blessed my lives with heart kids and moms and made me grateful for all the medical professionals that help improve the lives of others. We are blessed!
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