Post Op Day 6

Tyler continues to progress.  He has one IV left and we are hoping to go home in the next day or so, but we shall see. He is starting to get agitated with everything and everyone.  He did great for the first week and after that has had enough.  I remember reading on so many blogs about how their kiddos do fine emotionally for the beginning of the Fontan stay and all of a sudden hit some major mental hurdles.  I am trying to be patient.  Having a hard time knowing how firm or understanding I should be with his meltdowns.  Tyring my best to just reassure him that everything will be alright and trying to have him communicate nicely what his needs are.  I have been so surprised how great he has communicated his feelings and needs.  Even if it is yelling at the top of his lungs that he doesn't want another IV or doesn't want to watch TV at least he is communicating.

He woke up, got blood drawn, an X-ray taken and things look good.  His ventricular function is alright, his effusion appears to be gone and he is recoving nicely.  The main reason they don't want to send him home today is to really make sure his body is collecting fluid in his lungs.  This is very common in Fontans and the last thing they want to do is send a kid home prematurely just to have them back in the hospital a couple of days later.  Diuretics can usually resolve the problem, but if you are home, nobody knows what is going on.  The x-ray today was hopeful that this shouldn't be a problem.

He is taking a nap now and then we are off to play bingo. Last week he got a nerf football that was a lot of fun.  The little things make such a big difference.  So many friends have brought him things, sent him cards and called which make his day.  Thank you so much for all your love, support and prayers.  We defineteley feel them and the power of prayer!