UCSF Liver Appt

Saw Dr. Rosenthal today who thinks Tyler looks SOOO much better. The nurse said he looks like a totally different baby than how Susan explained him to be. Dr. Rosenthal said that he would be surprised if his bili counts were over 2, even though the labs might take a while to come down. He matched the lab the first week he guessed. He said to tell the cardiology people to make sure they knew who fixed up Tyler before his surgery. So that was good news. They are concerned about his weight gain and entertaining a feeding tube at night that we could take out during the day. We shall see. We saw Jolene, a baby, who had the norwood the same week as Tyler. She has the Glenn tomorrow and we pray for the McMullens and baby Jolene. She looks great and I know she will do fine. They told her that the surgery is usually much easier than the Norwood and if all goes well she could be in the ICU for 1 day and step-down for 1 week...that is in a perfect world and we all know Tyler likes to have us ride a few rollercoasters and take us on some joy rides along the way. I am planning that we will have a longer stay. A lot depends on what he needs fixed as well. So things are going well. He is still sleeping quite a bit and much happier than the first 4 months of his life.