Day 1

Tyler did great in the NICU. They put some lines through his belly button and he was pink and breathing on his own. He looked so great. The cardiologist came and talked to us about 8:30 PM after his echo and said that his left ventricle looked larger than they expected. He said that discussions and decisions at UCSF will be very interesting in the next week as we plan what the best surgery option is for Tyler. He confirmed that he had a hypoplastic left ventricle and aorta as well as other smaller issues including an AV canal and valve problems. There was some discussion that the 3 stage Norwood procedure might not be needed if the left side of the heart can sustain life, which was hopeful but by no means the prognosis. It was great to see him peaceful and resting. The next morning, he was still doing great and they decided to intubate him for the ambulance ride to UCSF in case the medication he was on caused him to stop breathing which is common. He looked great and Danny and I got to hold him for over an hour before he left. He was so peaceful and looked so great. What a blessing. They released me that morning so I could go to UCSF to be with him. It is amazing what your body will do to be with your little one. I went to UCSF that evening with my parents and Scott. Scott was a little scared of the machines and doctors so he didn't get to see him.